Today was the day

Today Ryan left for Chicago. It was a pretty chill weekend. Yesterday we spent the day with the inlaws then came home to relax. I dyed my hair back all the way brown for the interview Thursday. It still had a pinkish tint but Ryan swears it looks auburn. I'm too lazy and cheap to try again so it stays.

It will do. I do miss the pink though. Maybe if I don't get either job, I'll redo it.

Today Ryan packed and did somethings for me around the house before he left. We got Kenna's window plastic covered so maybe she'll sleep in later so she won't be so cold. A mom can dream right? He did some other small household chores. I dropped him off at the train station at 6:20ish. His train left at 6:50. I didn't cry and I don't think he did. At least I didn't see it. I probably won't see him until Saturday morning. Its cheaper for him to come home Saturdays so thats what we'll do. Its going to be a rough week. Wednesday me and Kenna get to go to the inlaws to house sit until Sunday. So my first week alone, I get to watch Kenna and their dog all by myself. It should be fun or at least it'll keep me busy.

Week one started, 42 more to go.

Trick or Treating with the Center for the Blind!

Today we just stayed at home and did nothing. It was a good day but uneventful. The only thing that happened today was that my old teacher and a RN supervisor at a hospital called and we set up an interview. I'm pretty excited. I know that I don't NEED this job, but the extra money will definitely come in handy. Hopefully I can get one and we can pay off the debt faster and get a house sooner. :)

Anyways, yesterday Kenna had trick or treating with the center. All the kids were adorable. Kenna was a little lady bug. She did pretty well the first half and then had a breakdown in the middle. We took a break and fed her a bottle and she was perfect. She got a lot of candy that we (mostly I ) will be eating. She also got 3 toothbrushes so we should be set for a while. Here are some of the better ones we got.

Here she is playing with her plastic bag from her costume:

 Admiring her pretty dress:

Getting into trouble:

Chewing on her wings. It was the only thing that made her happy at the end:

And her just being adorable:

She tolerated her costume surprisingly well. I was happy with how it all turned out. Ryan also came with us so he would get to see her. I'm glad he spent half the day with us. I'm sure he enjoyed it since he leaves on Sunday.


All in all it was a good experience. We had a great day. ;)

Kenna's new love

Today was crazy windy and stormy. It was kinda scary. We stayed in so we wouldn't get blown away. Kenna decided she was really hungry and ate 2 whole stage 2s for breakfast. It was the most I've seen her put away. It was very impressive. She was also pretty clingy this morning. I think her teeth are bothering her. Teeth are the devil.

So after breakfast we got dressed and she spit up milk all over herself. It was stinky so I changed her into her Bears onesie. I wanted to make sure it fit. It did and she looked adorable.

Then she spit up milk all over that so we changed again. The milk must have set out too long. Baby spitting up old milk smells terrible if you didn't know. Ick. So we basically just hung out all day. She realized my iPod plays music so she listened to it for a while. She turned on the music herself and sat next to me for 20 minutes while listening. It was nice. She also took off the cover to chew on earlier. It apparently feels good on her gums because she was going to town. It was soggy.

In case you were wondering, she likes Jay-Z and Jason Mraz. We also listened to some New Found Glory and Rufio. She has great taste in music. :) I'm proud. So that was our day. Exciting no? Here is a picture of our cat Iris for fun.

The beginning

I know most of the people reading this will know all about her but humor me.

We (well I I guess)  got pregnant on our honeymoon. It was a shock to everyone but we were very excited. Everything was normal until around 33 weeks when I started getting high blood pressure. Around 35 weeks I was hospitalized for it. I also had a follow up ultrasound to check fluid levels and the doctor noticed a heart defect. They thought it was worse than it is, so we were rushed to Children's for a fetal echo. I was released 2 days later and was put on strict bed rest. At 37 weeks and 6 days I was induced because of my high B.P. and Kenna had stalled in growing. Exactly 48 hours after I checked in, Makenna Ann was born. She had red lesions on her face and was really tiny at 5lbs 4.5oz and 18.1 in long.

After she was born, she was rushed to the NICU for observation. She had every sort of doctor look at her. Her dermatologist is the one that recognized all her symptoms as M.I.D.A.S. I believe about 23 cases are known in the country. We got the news about her blindness early one morning before we got to the NICU. It was a rough ride to the hospital. We both cried on our way there. We had to grieve the "normal" baby we lost and  plan for our new special needs baby. She was released from the NICU 7 days after she was admitted.

Luckily, we have a Center for the Blind and Visually Impaired Children here so as soon as we found out Kenna was blind, we called and got set up for an evaluation. She started receiving PT and Vision therapy at 1 month. They came out once a week until this January and now I take her in for class every Thursday. She enjoys it.

As for her vision, we know she can see lights and shadows. She holds objects very close to her eyes and reach out for you if you're close enough. Her heart is fine. She has a murmur but it hasn't changed since she was born so as far as we know, she is golden there. She is hilarious and makes me laugh every day. She just started walking. She still isn't eating table foods so thats our daily struggle. But as far as everything else, she is as normal as she can be. We take one day at a time. We learn something every day.

Keep your arms and legs inside the vehicle at all times. Its sure to be a bumpy ride.